Donate Today


Get Involved


Rosie's Friends



Tobias was diagnosed at just eight weeks old with Infantile Fibrosarcoma – a tumour so rare that only 50 children in the last 20 years in Europe have been diagnosed with it.

When Tobias was just eight weeks old he was putting on very little weight and had stopped feeding. The GP found a suspicious lump on Tobias and referred them to the hospital. They found a mass on his ultrasound and his parents were told it was cancer.

His parents held him as he slept as the lump protruded out of his side and back. They were convinced he would die as the lump seemed to be growing by the second. He was diagnosed with a mesoblastic nephroma – a very rare type of kidney tumour. They were told it would be treatable by removing the kidney and the tumour together. However, the surgery was not as straightforward as hoped. The tumour was wrapped around the kidney with a difficult blood and nerve supply. During the surgery he lost his body weight in blood and was in ICU.

They then found a tumour on Tobias’ spine that had been missed and would need chemotherapy. During his second round of chemotherapy he suddenly became much worse.

Another ultrasound and CT scan revealed a new tumour near his liver. He would need another surgery and stronger chemo which would make him extremely ill.

Thankfully, his surgery was a success and Tobias responded well to the chemo. He still relies on a feeding tube that goes into his tummy to get his important nutrition and he struggles with his speech. At the time of writing, Tobias is now five years in remission.

Could you make a difference today?

Our Partners:


Katrina London

Katrina has specialised in the field of occupational personal injury for over 35 years and has worked exclusively for the victims of asbestos related diseases for the last 20 years.  Katrina is an APIL Accredited Occupational Disease and Asbestos Disease Specialist and Senior Litigator and has Law Society Personal Injury Accreditation. 


Carla Nuttall

Carla has over 20 years’ experience specialising in strategic communications, engagement and marketing across the public and private sector, including the BBC, Manchester Metropolitan University and Muse Developments. She is currently Executive Director of Corporate Affairs and Marketing for The Growth Company, an award-winning social enterprise that enables growth, creates jobs and improves lives.