Rosie Larkin is the namesake of Friends of Rosie. She was diagnosed with neuroblastoma when she was four years old. In 1991, just before her fifth birthday, Rosie died. Her family and friends set up the Friends of Rosie Children’s Cancer Research Fund during Rosie’s illness to help other children with cancer.
The team who looked after Rosie in hospital told her parents that getting funding for new children’s cancer research ideas was incredibly difficult. Rosie’s parents were determined to change that and so they started Friends of Rosie.
Neuroblastoma often starts in the tummy, commonly in the adrenal glands or the nerve tissue at the back of the abdomen. And it’s devastating that the outlook for children with neuroblastoma has changed little since Rosie died, with only 67% of children surviving to five years.
Lisa, Rosie’s mum, says, “I would just like to see a situation where no more parents have to sit in front of a doctor and be told, “We can’t cure your child”. I think we can do better than that.”
Together, we can give all children with cancer a brighter future. Become a Friend of Rosie and help us.